Care at Home for People Living with Dementia: Delaying Institutionalization, Sustaining Families

Care at Home for People Living with Dementia: Delaying Institutionalization, Sustaining Families

Author
Christine CeciMary Ellen Purkis
Publisher
Policy Press
Language
English
Year
2021
Page
208
ISBN
9781447359319
File Type
pdf
File Size
14.5 MiB

Front Cover -- Care At Home For People Living With Dementia: Delaying Institutionalization, Sustaining Families -- Copyright Information -- Table Of Contents -- About The Authors -- Acknowledgments -- Foreword -- Preface -- 1 Studying Family Care Practices -- About The Study -- The Book -- Developing A Different Sense Of The Problem -- Note -- 2 From Strategy To Service: Practices Of Identification And The Work Of Organizing Dementia Services -- Sociomaterial Associations And A 'looming Catastrophe' -- From Private Troubles To Political Strategy Taking Dementia Seriously: National Dementia Strategy Documents -- Interviewing Key Informants -- A Framework For Studying Relational Logics -- The Sociopolitical Context Of Dementia -- Narratives Of Navigating A 'looming Catastrophe' -- The Ideal Programme -- Convening For Coordinated Action On 'navigation' -- Extending Navigation Beyond Human Actors -- Patchwork 1: We'll Make It Work, Don't Worry About It -- Patchwork 2: 'what Else Are You Going To Do?' -- Discussion: Identification, Strategy, Inclusion 3 How To Support Care At Home? Using Film To Surface The Situated Priorities Of Differently Positioned 'stakeholders' -- About The Film -- Ethnographic Storytelling As Intervention -- Processes For The 'film Intervention' -- Surfacing Situated Priorities -- Reading Events In The Film: The 'plight' Of The Caregiver -- 'trying To Work It Into Life': Marking Time Versus Living 'in' Time -- Seeing Problems Of Connection -- Supporting Diverging Interests -- Acknowledgements -- 4 Negotiating Everyday Life With Dementia: Four Families -- Understanding: The 'play' Of Language Family 1: Colleen And James Miller -- Overview -- Family 2: Helen And Albert Baker -- Overview -- Family 3: Ken And Marla Roberts -- Overview -- Family 4: Katherine And David Cruz, Sons Josh And Brent -- Overview -- 5 Relations Between Formal And Family Care: Divergent Practices In Care At Home For People Living With Dementia -- Ecology Of Practices As A 'tool For Thinking' -- Divergent Practices -- Feeling Borders: Stories About 'safety' -- Practices Of 'paying Due Attention': The Cruz Family -- Practices Of 'paying Due Attention': The Logics Of Formal Care When Divergent Practices Need Each Other -- The Case For Diplomacy -- 6 Patterning Dementia -- Helen And Albert And The 'beginnings Of Dementia' -- Ken And Marla: 'your Patient/my Wife' -- Colleen And James And Being Prepared -- Interferences And Intersections -- 7 Borders And Helpfulness -- Ken And Marla: An Interest In Keeping Up Appearances -- Colleen And James: An Interest In Being Prepared -- Katherine, David, Josh And Brent: An Interest In Maintaining A Family As A Family -- 'addressing People As They Belong': A Challenge Of Borders -- 8 How To Sustain A Good Life With Dementia? Christine Ceci And Mary Ellen Purkis. 'trying To Listen To That Which Insists' Electronic Reproduction. Baltimore, Md Available Via World Wide Web.

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