What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and friends to understand, because the experience of serious illness is so hard to articulate. That’s why Claire Wineland’s memoir, Every Breath I Take, Surviving and Thriving With Cystic Fibrosis, is so important. With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and a remarkable sense of humor just what it’s like to live with an illness that is so often fatal. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to live as normal a life as possible while taking care of a condition that requires constant treatment and frequent hospitalization. Yet there’s nothing grim about Claire’s journey as she describes it. Claire finds the sunny side of life and the spirituality of her experiences in ways that captivate and amaze the reader. It’s impossible to come away from the book without a renewed sense of compassion and sensitivity toward anyone suffering from a serious illness. The book is required reading for anyone—adult or child—who wants to understand how it truly is possible to survive and thrive, no matter what.
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